CVI Fact Sheet for Therapists (PTs, OTs & SLPs) Cortical Visual Impairment (CVI) is a congenital or acquired brain-based visual impairment which is unexplained by an ocular disorder and associated with unique visual and behavioral characteristics. A child has CVI when: • The visual loss cannot be fully explained by an eye exam. • There is a history of a neurological condition or traumatic event that affects the brain — even if brain imaging studies appear normal. • The child demonstrates a set of unique visual and behavioral characteristics identified in medical and educational research. 1, 2 “Some of these characteristics can be confused with signs of other prevalent diagnoses such as autism. Similarities include watching objects that move, trouble making eye contact with others, a preoccupation with light... These are things I keep in mind, especially when a child has a history of a neurological condition. Stephanie N. Hall, M.S., OTR L, ITFS What are the most common causes of CVI? Medical conditions that disrupted a portion of the visual pathways can cause CVI. These can include: • Perinatal hypoxia • Hydrocephalus • Traumatic brain injury • Congenital infections such as cytomegalovirus Intraventricular hemorrhage • Periventricular leukomalacia • Genetic disorders • Stroke Researchers estimate up to 70% of children with cerebral palsy aslo have CVI. 3 Behaviors commonly associated with CVI: • Lack of visual curiosity • Hesitancy interacting in new environments or with new items • Difficulty looking at and reaching for objects at the same time • Increased visual attraction to lights, windows, or ceiling fans • Tendency to respond to sound or an auditory stimulus, rather than to visually regard and see a target • Difficulty finding objects in a busy environment, such as the grocery store or playground • Difficulty navigating through a building or community environment • Tilts head to regard object in a specific visual field • May have difficulty with lower field visual regard, affecting navigation of stairs, curbs and terrain changes, playground slides, and notice of objects on the ground • Difficulty making eye contact or recognizing familiar faces • Difficulty visually attending in a busy environment • May take longer to look at or visually process information For more information, visit PCVIS at pcvis.vision PCVIS is a 501(c)(3) nonprofit organization transforming outcomes for children with CVI by advocating for research, policy, education, practice, heightened awareness and understanding of this brain-based visual impairment. 1 What is the therapist’s role? • Evaluate the child’s functional skills to determine the cause of the underlying impairment(s) such as functional vision vs. sensory vs. coordination (usually OT). • Develop a treatment service plan addressing functional performance that incorporates functional vision and visually guided movement. • Facilitate social interactions and participation. • Recommend assistive technologies that support use of vision, such as: -Mobility aids: walker, gait trainer, wheelchair. -Seating: adaptive seating or positioning device. -Communication: Augmentative and Alternative Communication Devices (AAC). • Collaborate with caregivers regarding: -Environmental adaptations (home, school, and community). -Adaptations to daily activities and routines. -Observations of child’s visual responses before and after adaptations. -Provide ongoing education and resources • Collaborate with other professionals regarding: -Effective visual adaptations. -Child’s functional performance in other environments and conditions. What can you do if you suspect CVI? • Refer the individual to an ophthalmologist, neurologist, neuro-ophthalmologist, or optometrist. • Communicate with the physician and/or give parents specific language to discuss with the physician. • Contact school personnel to ensure the child is assessed by all relevant disciplines (i.e., Teacher of Students with Visual Impairment and Orientation and Mobility Specialist). • Recommend or perform a functional vision assessment specific to CVI (e.g., CVI Range© 1, 2). • Trial environmental and task adaptations to improve visual response. Common task, material object, and environmental adaptations • Reduce the complexity of a visual target/object. • Reduce or eliminate background information (e.g., put up black trifold, reduce clutter). • Reduce the number of items offered at one time. • Allow extra time for a child to view an object before moving it to a new position. • Position materials or objects in the child’s best regarded visual field. • Change light as needed by either eliminating distracting light and/or using light to spotlight a specific object to elicit visual attention. • Seating away from a busy part of the room and/or preferential seating. • Use one bright color to highlight a specific part of materials or environmental features. • Use language to support vision by labeling the salient visual features of an object. Things to consider • Visual accommodations should be considered for all aspects of a child’s day. • Apparent fluctuations in vision manifest from changes in environments and internal states. • Consider how vision is used in a variety of situations and environments. • Consider the impact of vision on the identification of any motor delay. • Incorporate vision strategies from professionals who understand the child’s vision. • The level of visual support needed may change. When the child is completing a familiar task, they may not need as many adaptations. When the child is learning a new task, make it easier to use vision by providing additional visual adaptations. • Look for opportunities to challenge vision when the child is highly motivated or familiar with the task (e.g., during feeding or during a highly preferred task). 1 Roman-Lantzy, C. (2018). Cortical Visual Impairment: An Approach to Assessment and Intervention. 2nd ed., New York, NY: AFB Press. 2 Roman-Lantzy, C. (2019). Cortical Visual Impairment: Advanced Principles. Louisville, KY: APH Press. 3 Durkin MS, Benedict RE, Christensen D, et al. (2016) Prevalence of Cerebral Palsy among 8-Year-Old Children in 2010 and Preliminary Evidence of Trends in Its Relationship to Low Birthweight. Paediatr Perinat Epidemiol. 2 1