About PCVIS

Executive Officers

Cullen Waugh

Cullen Waugh

President

Territory Manager, Bard Peripheral Vascular

Bio

Cullen Waugh’s son, Griffen (11), was born at 24 weeks gestation, weighing one pound and ten ounces. He was diagnosed with cortical visual impairment at 9 months old. His wife Alisha, relying on her background as a physical therapist, researched CVI and neuroplasticity. They found Dr. Christine Roman-Lantzy’s book and made an appointment with her to evaluate Griffen’s functional vision.

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Nicole Hooper, OD

Vice President

Visiting Assistant Professor, University Eye Institute, University of Houston

Bio

Dr. Nicole Hooper has a clinical interest in all facets of low vision rehabilitation, with an emphasis on multi-disciplinary collaborative care. She enjoys teaching and learning, and finds working in low vision rehabilitation to be both challenging and rewarding.

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Lindsay Hillier, MEd

Lindsay Hillier, MEd

Past President

Manager, Training and Quality Assurance, Surrey Place, Ontario Blind-Low Vision Early Intervention Program

Bio

Lindsay Hillier has worked in the field of Early Childhood services (birth to five years) with children who are visually impaired for over 29 years. Her background is in Early Childhood Education and she holds a master’s in Special Education: Visual Impairment. Lindsay has been a speaker at a number of conferences related to CVI and its impact on professional service delivery.

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Seeking Candidates for Treasurer

This new position is open for candidates with a suitable background.

Board of Directors

Francesca Crozier-Fitzgerald

Francesca Crozier-Fitzgerald

Board Member

Teacher of the Visually Impaired and Journalist

Bio

Francesca Crozier-Fitzgerald is a certified teacher of students with visual impairments and a journalist. She has served students with CVI in classroom settings and after-school programs, designed to focus on all areas of the Expanded Core Curriculum. She is currently working with students ages 3-21 in Miami, FL.

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Rebecca Davis

Rebecca Davis

Board Member

Founder and Former Development Director and Parent Adviser, Visually Impaired Preschool Services (VIPS) Indiana

Bio

Rebecca Davis is the mother of two teenage daughters and a CVI parent advocate. After witnessing firsthand the challenges of finding appropriate early intervention for her visually impaired daughter, Rebecca became determined to improve services for other families.

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Kerri Dietz-Pillen, OD

Board Member

Optometrist and Owner, Bellevue Vision Clinic

Dr. Kerri Pillen has practiced general optometry care for more than 30 years, specializing in vision therapy for patients of all ages, particularly after brain injury or stroke. She obtained a degree in optometry from The Ohio State University, College of Optometry.

Jonathan Graves, MEd, CTVI

Jonathan Graves, MEd, CTVI

Board Member

Certified Teacher of the Visually Impaired and Certified Assistive Technology Specialist

Bio

Jonathan Graves has supported vision instruction in both itinerant and classroom teaching positions at Foundation for Blind Children in Arizona, where he focused on braille and technology instruction and provided assistive technology assessments for children

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Karen Harpster, PhD

Karen Harpster, PhD

Board Member

Clinical Researcher and Occupational Therapist, Cincinnati Children’s Hospital Medical Center

Bio

Karen Harpster, PhD, evaluates and treats children with neurodevelopmental disorders, largely focusing on children with cortical visual impairment. She also conducts intervention research involving children with neurodevelopmental disabilities such as CVI, cerebral palsy, hydrocephalus, and autism.

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Richard Legge, MD

Richard Legge, MD

Board Member

Assistant Professor, Department of Ophthalmology and Visual Sciences, Truhlsen Eye Institute, University of Nebraska Medical Center

Bio

Dr. Richard “Skip” Legge has been interested in improving the understanding of children with CVI since he began to practice in 1991. It has been his enduring professional passion to address what children with CVI see, how they see, how we can help them to see better, and how we can make their lives better.

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Toby Lunstad

Toby Lunstad

Board Member

Parent and Occupational Therapist

Bio

Toby Lunstad is the parent of 5 year old Addilynn, who acquired CVI after experiencing a traumatic brain injury from prolonged seizures in January 2018. Addilynn has a rare genetic disorder which is the cause of the seizures and other global developmental delays.

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MaryAnne Roberto, CTVI

MaryAnne Roberto, CTVI

Board Member

Teacher of the Visually Impaired and Perkins-Roman CVI Endorsed Specialist, Envision Consulting LLC

Bio

MaryAnne Roberto has been a teacher of the visually impaired since 1983. She has worked at Overbrook School for the Blind in Philadelphia, PA, as a classroom teacher in the Early Childhood Program, as well as the Early Intervention Program where she was a Teacher Mentor and an Early Intervention Specialist.

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Christine Roman-Lantzy, PhD

Christine Roman-Lantzy, PhD

Board Member

Director, Pediatric View, The Western Pennsylvania Hospital

Bio

Christine Roman-Lantzy, PhD, was raised in Michigan and received degrees in Elementary Education and Special Education/Visual Impairment at Michigan State University. She worked as an itinerant teacher of the visually impaired in the greater Pittsburgh, PA,

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