Salient Features: The PCVIS Blog
Welcome to Salient Features: The PCVIS Blog! And welcome to the conversation about CVI. Here PCVIS members share stories, experiences, and information that will enrich the greater CVI community.
If you are a member and want to share something, go to our submission page.
Not a member yet? Join us and together we can change the outlook for children with CVI.
Clinical Report Released: Diagnosis and care of children with CVI
The report is written to help pediatricians and other clinicians identify and refer patients with suspected CVI and provide the next steps after diagnosis. Here are 10 highlights.
PCVIS members make strategic plans for 2025
Members shared their renewed commitment to achieving our strategic planning goals.
5 key elements of the working definition of CVI
In a workshop sponsored by the National Institutes for Health (NIH), a group of clinicians developed and published a working definition of CVI.
8 takeaways from Innovations in CVI
Last week, The Children’s Home of Pittsburgh Pediatric VIEW hosted the Innovations in CVI Conference, focusing on navigating teams and transitions. Founded in 1999 by Dr. Christine Roman-Lantzy as an extension to NICU follow-up programs at West Penn Hospital, the...
PCVIS celebrates a decade of CVI advocacy
For 10 years, PCVIS has engaged in multidisciplinary collaboration and advocacy for children and youth with CVI. It began with a curious clinician and self-described “CVI journeyman.” Over a 33-year career as an ophthalmologist, Dr. Richard “Skip” Legge built his CVI...
A Guide for CVI Advocates: Using Personal Stories to Impact Legislative Change
Advocacy is more than just raising your voice; it's about telling your story in a way that resonates with policymakers and the public. As someone deeply invested in the well-being of children with Cortical Visual Impairment (CVI), I’ve found that sharing personal...
Win free registration to the Innovations in CVI conference
Will you be one of two lucky members to win a ticket to attend the Innovations in CVI conference in Pittsburgh?
Join us for the 2024 PCVIS Annual Meeting!
The PCVIS Board of Directors invites members to join us for our annual meeting. Wednesday, Oct. 2, from 5 – 7:30 pm, at the Sheraton Pittsburgh Hotel at Station Square.
10 highlights from the Perkins CVI Conference
PCVIS sponsored last week’s Perkins CVI Conference in Boston, a time for rich learning and community building. Many of our members attended, including about half of our Board of Directors.
Ticket giveaway to 2024 Perkins CVI conference
The ticket giveaway is now closed. Meet us in Boston for the 2024 Perkins CVI Conference, June 23-25 As a sponsor of this event, the Pediatric Cortical Visual Impairment Society will provide two of our members with free conference registration. We are...