Salient Features: The PCVIS Blog
Welcome to Salient Features: The PCVIS Blog! And welcome to the conversation about CVI. Here PCVIS members share stories, experiences, and information that will enrich the greater CVI community.
If you are a member and want to share something, go to our submission page.
Not a member yet? Join us and together we can change the outlook for children with CVI.
Protect Medicaid Nationwide for Children and Youth With CVI
Call your U.S. Senator to urge them to vote NO on H.R.1 and Medicaid cuts that will adversely affect children and youth with CVI.
Proposed Federal Budget to Cut Education Support for Children with CVI and Deafblindness
The proposed federal budget for the U.S. Department of Education would cut funding for CVI education support by defunding IDEA Part D Technical Assistance and Dissemination and reallocating it to IDEA Part B as block grants to states. Several national technical...
Self-Advocates With CVI: Apply for Board Position
The PCVIS Board of Directors invites self-advocates with CVI to apply to the board and contribute to strategic planning and implementation.
Making Accessible Literacy Materials for Students With CVI
Students with CVI need specific types of accessible literacy materials to succeed. Here are a few approaches for adapting your CVI student’s materials.
Call to Action: Protect Medicaid & Long-Term Services and Supports
What's happening?Here’s a synopsis from our advocacy partners at Prevent Blindness: Congress is considering a budget resolution with at least $880 billion in cuts to programs under the House Energy and Commerce Committee, which oversees the Medicaid program. Medicaid...
This Is Who We Are: The PCVIS Code of Ethics
This code of ethics expresses who we are and what we stand for as members of PCVIS.
Clinical Report Released: Diagnosis and Care of Children With CVI
The report is written to help pediatricians and other clinicians identify and refer patients with suspected CVI and provide the next steps after diagnosis. Here are 10 highlights.
PCVIS members make strategic plans for 2025
Members shared their renewed commitment to achieving our strategic planning goals.
5 key elements of the working definition of CVI
In a workshop sponsored by the National Institutes for Health (NIH), a group of clinicians developed and published a working definition of CVI.
8 takeaways from Innovations in CVI
Last week, The Children’s Home of Pittsburgh Pediatric VIEW hosted the Innovations in CVI Conference, focusing on navigating teams and transitions. Founded in 1999 by Dr. Christine Roman-Lantzy as an extension to NICU follow-up programs at West Penn Hospital, the...