Medical Professionals
What Can the Doctor Do After Diagnosing CVI?
Inform parents that with intentional, strategic interventions, there is an expectation of improved functional vision.
Treat the ocular disorders as you usually do. Strabismus, refractive errors, accommodative insufficiency, amblyopia, cataract, etc.
Certify the child as being “legally blind” or “visually impaired” due to neurological disorder. This will qualify the child for state-funded services for children with visual impairment.
Provide a copy of your progress note or compose a letter to the parents with your diagnosis of cortical visual impairment and complete examination findings, including a descriptive visual acuity. In your recommendations state: The child should receive “assessment and intervention for CVI to the best of the ability of the teacher of the visually impaired, and other therapists involved in the child’s care.” Direct the parents to provide a copy of the report along with certification of diagnosis to the child’s school administration or agency providing services. Remember that the child and her visual/educational challenges will change over time.
Individualized Family Service Plan (IFSP)
Children up to age 3 who have a disability may be eligible for early intervention services provided through an Individualized Family Service Plan, or IFSP, under Part C of the Individuals with Disabilities Education Act.
Individualized Education Plan (IEP)
Children with a disability that interferes with education who attend a school with federal funding may qualify for an individualized educational plan, or IEP, under the Individuals with Disabilities Education Act.
Provide resources to the parents and ask, “What do you need for your IFSP or IEP?” Here are some resources for parents of newly diagnosed children.
Monitor eye health. Look for changes in recovered visual function. As kids mature, you can assess things you couldn’t assess before. Advise parents that you will stay engaged with the child or refer them to an eye care provider who will. These children need periodic assessments every one to two years. At a minimum, the state usually requires a periodic certification of diagnosis.