At our annual meeting this October, joined by members from every spoke of our wheel–parents, educators, medical practitioners, therapists, authors of leading CVI research–we were overcome to see such a healthy presence of the new generation of PCVIS: CVI self-advocates. These teens took time out of their busy teenage lives to arrive in Pittsburgh, PA, share their experiences, educate the room, and effect change for individuals everywhere with CVI. Their very presence embodied our direction, our intention, and our newfound momentum.
This year, in a climate of incessant uncertainty, our Society committed to the elements within our control: fortifying our mission through tangible outputs on our strategic planning goals. As you’ll find on the pages of this report, progress has been palpable. To name a few, our Knowledge Base is live, a policy on early identification is being drafted, giftable memberships and CVI self-advocate membership brackets have been launched, and critical partnerships have fallen into place. We have been busy and have clear, audacious goals for 2026.
Looking out on the horizon of 2026, The Year of Storytelling, we recognize that the strength of our Society has always been in shared experience, stories of resilience, discovery, and growth. They give urgency to our advocacy, helping us build a future where awareness leads to action, and action leads to meaningful change for children with CVI and their families.
Thank you to our members, donors, the steadfast commitment and creativity of our Executive Director, and our Board of Directors for their expertise and investment in this mission.
PCVIS Presidents
Francesca Crozier-Fitzgerald
Christine Roman-Lantzy
