by PCVIS Team | Oct 29, 2025 | Advocacy, CVI Advocacy and Awareness, CVI Events, PCVIS News
The PCVIS Annual Meeting, held October 22, 2025, in Pittsburgh and online, celebrated a year of advocacy, growth, and collaboration across the CVI community. Co-Presidents Francesca Crozier-Fitzgerald and Christine Roman led the event, joined by members,...
by PCVIS Team | May 19, 2025 | Advocacy, CVI Advocacy and Awareness, PCVIS News
The Board of Directors invites self-advocates with CVI to apply to become board members and contribute to strategic planning and implementation. This would make an incredible impact on future generations of people with CVI and the trajectory of our organization....
by Francesca Crozier-Fitzgerald | Nov 24, 2024 | CVI Advocacy and Awareness, CVI Events, PCVIS News
Where We’ve Been and Where We’re Going… While PCVIS’ 10th anniversary was so regally adorned with a distinguished and decadent sheet cake, the true accomplishment of the 10th Annual Meeting was the participation of members and a renewed commitment to achieving our...
by Jessica Marquardt | Oct 8, 2024 | CVI & Education, CVI Advocacy and Awareness, CVI Continuing Education, CVI Events, CVI for Parents, CVI Medical Info, CVI Research
Last week, The Children’s Home of Pittsburgh Pediatric VIEW hosted the Innovations in CVI Conference, focusing on navigating teams and transitions. Founded in 1999 by Dr. Christine Roman-Lantzy as an extension to NICU follow-up programs at West Penn Hospital, the...
by Jessica Marquardt | Sep 16, 2024 | CVI Advocacy and Awareness, CVI Events, PCVIS News
For 10 years, PCVIS has engaged in multidisciplinary collaboration and advocacy for children and youth with CVI. It began with a curious clinician and self-described “CVI journeyman.” Over a 33-year career as an ophthalmologist, Dr. Richard “Skip” Legge built his CVI...
by Mara | Sep 3, 2024 | CVI & Education, CVI & Inclusion, CVI Advocacy and Awareness, CVI for Parents, Diagnosing CVI
Advocacy is more than just raising your voice; it's about telling your story in a way that resonates with policymakers and the public. As someone deeply invested in the well-being of children with Cortical Visual Impairment (CVI), I’ve found that sharing personal...
