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Pediatric Cortical Visual Impairment Society
From One Parent’s Testimony to State Policy: Lessons for CVI Advocates Everywhere

From One Parent’s Testimony to State Policy: Lessons for CVI Advocates Everywhere

by Jessica Marquardt | Jul 7, 2026 | Advocacy

Louisiana Act 943 is a special education law that changes who must prove their case in disputes between families and public schools over a student's special education program. (Legis Louisiana) Summary Currently, when parents challenge a school district's special...
Call to Action: Protect Community-Based Services for Individuals with CVI

Call to Action: Protect Community-Based Services for Individuals with CVI

by PCVIS Team | Jun 30, 2026 | Advocacy, CVI & Inclusion, CVI Advocacy and Awareness, CVI News

We stand with the many families impacted by cortical visual impairment (CVI) who rely every day on home and community-based supports and services to ensure their children and loved ones can learn, grow, and participate fully in community life. These services are not...
Advocacy in Action: Highlights From the 2025 PCVIS Annual Meeting

Advocacy in Action: Highlights From the 2025 PCVIS Annual Meeting

by PCVIS Team | Oct 29, 2025 | Advocacy, CVI Advocacy and Awareness, CVI Events, PCVIS News

The PCVIS Annual Meeting, held October 22, 2025, in Pittsburgh and online, celebrated a year of advocacy, growth, and collaboration across the CVI community. Co-Presidents Francesca Crozier-Fitzgerald and Christine Roman led the event, joined by members,...
Protect OSERS and Disability Services Nationwide

Protect OSERS and Disability Services Nationwide

by Kathryne Hart | Oct 14, 2025 | Advocacy, CVI & Education, CVI News

Urgent Action Alert: Contact Congress The recent cuts to the Office of Special Education and Rehabilitative Services (OSERS) have left critical federal positions unfilled—meaning there is now virtually no one left at the U.S. Department of Education to coordinate the...
Get Ready for the 2025 Annual Meeting

Get Ready for the 2025 Annual Meeting

by PCVIS Team | Oct 9, 2025 | Advocacy, CVI Events, PCVIS News

The PCVIS Board of Directors invites you to attend the annual meeting the evening before the Innovations in CVI conference begins. All members and friends of PCVIS are welcome. Wednesday, Oct. 22, from 5 - 7:30 pm ETHosted at The Children's Home of Pittsburgh and...
Protect Medicaid Nationwide for Children and Youth With CVI

Protect Medicaid Nationwide for Children and Youth With CVI

by PCVIS Team | Jun 26, 2025 | Advocacy, PCVIS News

Urgent Action Alert: Call Your U.S. Senators Today The U.S. Senate is preparing to vote on H.R.1, a budget reconciliation bill that would reduce Medicaid spending by over $800 billion. These drastic cuts threaten the health, independence, and education of our nation’s...
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Recent Posts

  • Music Therapy & CVI: New Self-Paced Course on Accessible, Inclusive Learning
  • CVI Range-CR Validation Study: Reliability and Validity of the Functional Vision Assessment
  • Study Protocol: CVI Range Assessment for Clinical Research (CVI Range-CR)
  • From One Parent’s Testimony to State Policy: Lessons for CVI Advocates Everywhere
  • Call to Action: Protect Community-Based Services for Individuals with CVI

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About PCVIS

The Pediatric Cortical Visual Impairment Society was founded in 2014 to advocate for children and youth with CVI. PCVIS is a 501(c)(3) nonprofit organization.

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