by Kira Brady | Jun 14, 2021 | CVI & Education, CVI & Social Emotional Learning, CVI Advocacy and Awareness, CVI at Home, CVI for Parents, Uncategorized
When I first discovered the Roman Word Bubbling app in early 2020, I quickly made a set of bubbled and laminated family names. I used velcro to attach them to a black foam board, sat my son in front of the board, and began working to teach him “Mommy,” “Mama,”...
by PCVIS Team | May 7, 2021 | CVI & Education, CVI Advocacy and Awareness
Please join us Wednesday, May 12th, at 7:30 ET for “Seeing through a CVI Lens” Part II, an interactive simulation experience, to walk in the shoes of an individual with CVI, experiencing the unique visual and behavioral characteristics associated with CVI...
by PCVIS Team | Mar 23, 2021 | CVI & Education, CVI Advocacy and Awareness, PCVIS News
As the mission of the Pediatric Cortical Visual Impairment Society is to advocate for children with CVI, heighten public awareness, and promote research and other activities that lead to improvement in vision care for children with CVI, we are excited to launch our...
by Barbara Lopez Avila | Jan 20, 2020 | CVI & Education, CVI Advocacy and Awareness, CVI at Home, CVI for Parents, CVI Literacy, Phase II CVI, Speech & Communication for CVI
Dr. Barbara Lopez Avila is a CVI mom and developmental psychologist. Her beautiful and brilliant son, Logan, is in Phase II on the CVI Range scale. As a mom to four gorgeous children, one diagnosed with cortical visual impairment (CVI), to say I am overwhelmed is an...
by PCVIS Team | Dec 15, 2019 | CVI Advocacy and Awareness, CVI Research
We have a critical opportunity to influence the future of CVI research! NIH's National Eye Institute (NEI) issued a Request for Information regarding its Strategic Plan, entitled 2020 Vision for the Future, with a response date of January 8, 2020. Building upon its...
by Kathryne Hart | Dec 4, 2019 | CVI Advocacy and Awareness, CVI for Parents, CVI Medical Info
Infantile Spasms Awareness Week: December 1-7 Kathryne Hart is an advocate for and parent of Carter, a 3 year old with multiple disabilities including CVI. Kathryne is a fierce advocate for CVI, working with state and local leaders in Louisiana to change the outlook...
