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Pediatric Cortical Visual Impairment Society
Call to Action: Protect Medicaid & Long-Term Services and Supports

Call to Action: Protect Medicaid & Long-Term Services and Supports

by PCVIS Team | Feb 25, 2025 | Advocacy, PCVIS News

What's happening? Here’s a synopsis from our advocacy partners at Prevent Blindness: Congress is considering a budget resolution with at least $880 billion in cuts to programs under the House Energy and Commerce Committee, which oversees the Medicaid program. ...
8 takeaways from Innovations in CVI

8 takeaways from Innovations in CVI

by Jessica Marquardt | Oct 8, 2024 | CVI & Education, CVI Advocacy and Awareness, CVI Continuing Education, CVI Events, CVI for Parents, CVI Medical Info, CVI Research

Last week, The Children’s Home of Pittsburgh Pediatric VIEW hosted the Innovations in CVI Conference, focusing on navigating teams and transitions. Founded in 1999 by Dr. Christine Roman-Lantzy as an extension to NICU follow-up programs at West Penn Hospital, the...
A Guide for CVI Advocates: Using Personal Stories to Impact Legislative Change

A Guide for CVI Advocates: Using Personal Stories to Impact Legislative Change

by Mara | Sep 3, 2024 | CVI & Education, CVI & Inclusion, CVI Advocacy and Awareness, CVI for Parents, Diagnosing CVI

Advocacy is more than just raising your voice; it's about telling your story in a way that resonates with policymakers and the public. As someone deeply invested in the well-being of children with Cortical Visual Impairment (CVI), I’ve found that sharing personal...
10 highlights from the Perkins CVI Conference

10 highlights from the Perkins CVI Conference

by Jessica Marquardt | Jul 2, 2024 | CVI & Education, CVI Advocacy and Awareness, CVI Continuing Education, CVI Events, CVI Medical Info, CVI News, CVI Research

The Pediatric Cortical Visual Impairment Society sponsored last week’s Perkins CVI Conference in Boston, a time for rich learning and community building. Many of our members attended, including about half of our Board of Directors. Here are 10 highlights from the...
Exploring Memory and Misrecognition in Children with CVI (Part 1)

Exploring Memory and Misrecognition in Children with CVI (Part 1)

by Kira Brady | Mar 19, 2021 | CVI & Education, CVI for Parents

Kerry Callahan Photography The more focussed, important, interesting or repeated an experience is, the stronger the memory will be. Therefore, memories are deeply personal. What one person may remember from an event may be completely different from another person at...
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Recent Posts

  • How Upright, Hands-Free Mobility Opens Doors for Children with CVI and Other Disabilities
  • Advocacy in Action: Highlights From the 2025 PCVIS Annual Meeting
  • Protect OSERS and Disability Services Nationwide
  • Get Ready for the 2025 Annual Meeting
  • Visual Behaviors in CVI

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The Pediatric Cortical Visual Impairment Society was founded in 2014 to advocate for children and youth with CVI. PCVIS is a 501(c)(3) nonprofit organization.

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